Living with Autism and an Ostomy: Tips for Managing Health and Wellness with an Ostomy Pouch

Living with autism can be challenging on its own, but when combined with managing an ostomy pouch, it can become even more difficult. An ostomy pouch is a medical device that is attached to the abdomen to collect waste when a person has had surgery to remove part or all of their colon. However, there are ways to manage this condition and maintain overall health and wellness. In this article, we will discuss tips for managing health and wellness with an ostomy pouch when living with autism.

Understanding Autism and Its Impact on Ostomy Care

People with autism often have difficulties with communication, social interaction, and sensory processing, which can make it challenging to manage their ostomy pouch effectively. Additionally, some individuals with autism may have difficulties understanding why they need to wear an ostomy pouch and how to properly care for it.

Therefore, it is important to approach ostomy care with an understanding of how autism may affect a person’s ability to manage their ostomy pouch. It may also be helpful to have a caregiver or support person who can provide guidance and assistance with ostomy care tasks.

Tips for Managing Health and Wellness with an Ostomy Pouch

  1. Establish a routine – People with autism often thrive on routine and structure. Therefore, it may be helpful to establish a regular schedule for emptying and changing the ostomy pouch. This can help to reduce anxiety and promote a sense of control.
  2. Use visual aids – Visual aids, such as diagrams or pictures, can be helpful for individuals with autism to understand the ostomy pouch and how to properly care for it. These aids can also be used to help individuals communicate their needs and concerns to caregivers or healthcare professionals.
  3. Practice sensory integration – Sensory processing issues are common among individuals with autism. Therefore, it may be helpful to practice sensory integration techniques, such as deep breathing or sensory stimulation, to help reduce anxiety and promote relaxation during ostomy care tasks.
  4. Choose the right ostomy products – There are many different types of ostomy pouches and accessories available, so it is important to find the ones that work best for each individual’s needs. This may involve trying different products and experimenting to find the right fit and comfort level.
  5. Stay hydrated and eat a healthy diet – Proper hydration and nutrition are essential for overall health and wellness, especially when living with an ostomy pouch. It is important to drink plenty of fluids and eat a balanced diet that includes plenty of fruits, vegetables, and fiber.
  6. Exercise regularly – Regular exercise can help to improve physical and mental health, reduce stress and anxiety, and promote overall well-being. However, it is important to consult with a healthcare professional before starting any new exercise regimen.
  7. Seek support – Living with an ostomy pouch can be challenging, and it is important to have a support system in place. This may include family, friends, healthcare professionals, or support groups for individuals with ostomies or autism.

Read also: What You Need to Know About Autism, the Facts, and Statistics


Living with autism and an ostomy pouch can present unique challenges, but there are ways to manage this condition and maintain overall health and wellness. By understanding how autism may impact ostomy care and implementing strategies to manage this condition, individuals with autism and an ostomy pouch can lead happy, healthy, and fulfilling lives.